Dealing with our daughter's medical problems has brought with it many new vocabulary words, one of which is an especially persistent annoyance = emesis.
emesis [ˈɛmɪsɪs]
Yesterday was vomit-free and I was under the impression that today would be similarly vomit-free but she had her daily gut clearing while we were at the cardiac clinic for a follow-up visit.
The follow-up visit consisted of an EKG and an echo while Iris was on and off oxygen. They found that the oxygen is still helping her (i.e. she has septal flattening while off oxygen) so she is staying on it. We also were given the results of some of her genetic tests, which came back negative. We are still waiting on the results of some of the tests and I will be calling the geneticist later in the week to get a clearer idea of which results these were. I think we can tentatively say that she doesn't have any of the scary syndromes associated with aniridia that also include cognitive developmental delays. A good thing.
Iris has shown progress over the weekend in terms of her weight gain, but it's not enough. She went from 4.25 kg (9lbs 6oz) to 4.3 kg (9lbs 8oz). They want her to be gaining 0.014 kg (0.5 oz) per day and she is missing that mark. Her vomiting certainly does not help the matter.
emesis [ˈɛmɪsɪs]
n
Iris has one vomit a day. It is a rare treat when she makes it an entire day without a vomit. This may be a sign of reflux, but we are under the impression that the Zantac and the Prevacid are doing the appropriate things to combat reflux.Yesterday was vomit-free and I was under the impression that today would be similarly vomit-free but she had her daily gut clearing while we were at the cardiac clinic for a follow-up visit.
The follow-up visit consisted of an EKG and an echo while Iris was on and off oxygen. They found that the oxygen is still helping her (i.e. she has septal flattening while off oxygen) so she is staying on it. We also were given the results of some of her genetic tests, which came back negative. We are still waiting on the results of some of the tests and I will be calling the geneticist later in the week to get a clearer idea of which results these were. I think we can tentatively say that she doesn't have any of the scary syndromes associated with aniridia that also include cognitive developmental delays. A good thing.
Iris has shown progress over the weekend in terms of her weight gain, but it's not enough. She went from 4.25 kg (9lbs 6oz) to 4.3 kg (9lbs 8oz). They want her to be gaining 0.014 kg (0.5 oz) per day and she is missing that mark. Her vomiting certainly does not help the matter.
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