Iris had two doctor appointments today. The first was with the pediatrician who was supposed to see her shortly after discharge from the hospital to get an idea of her baseline. Turns out the pediatrician also has a cardiac baby who is now 8 years old and plays soccer. The second appointment was with the cardiac clinic at Children's. That appointment went much longer.
The good news from today is that Iris's incision wounds are healing well. The cardiologist was pleased with her progress. The bad news is that Iris lost weight and everyone is especially concerned about her getting behind. When she left the hospital she weighed 4.3 kg (9 lbs 8 oz) and today she weighed in at 4.25 kg (9 lbs 6 oz). Apparently it is hard for babies to get enough calories after a big surgery because their bodies are working so hard to heal. It doesn't help that she is a "reflux queen" (in the words of the physical therapist). So we have just started her on Prevacid. We also have to "fortify" her bottles with formula. She is not getting straight formula but at each feeding she is supposed to get mostly breast milk with a tiny bit of formula added in.
The good news from today is that Iris's incision wounds are healing well. The cardiologist was pleased with her progress. The bad news is that Iris lost weight and everyone is especially concerned about her getting behind. When she left the hospital she weighed 4.3 kg (9 lbs 8 oz) and today she weighed in at 4.25 kg (9 lbs 6 oz). Apparently it is hard for babies to get enough calories after a big surgery because their bodies are working so hard to heal. It doesn't help that she is a "reflux queen" (in the words of the physical therapist). So we have just started her on Prevacid. We also have to "fortify" her bottles with formula. She is not getting straight formula but at each feeding she is supposed to get mostly breast milk with a tiny bit of formula added in.
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